Rarus Health provides a digital platform that assists families with rare genetic diseases by offering personalized care plans and access to a multidisciplinary team of healthcare professionals. The platform streamlines the diagnostic process and treatment coordination, while generating validated data for pharmaceutical research and development.
Funding
Funding not disclosed
Founders
Product
Problem
Families of individuals with rare genetic diseases often face challenges in obtaining timely and accurate diagnoses, coordinating care among multiple specialists, and accessing personalized treatment plans. The rarity of these conditions can lead to delays in diagnosis, fragmented care, and a lack of comprehensive support for both the affected individual and their family.
Solution
Rarus Health offers a digital care platform designed to streamline the diagnostic and treatment journey for families affected by rare genetic diseases. The platform provides families with access to a multidisciplinary team of healthcare professionals, including specialists in psychology, nursing, speech therapy, and occupational therapy, who collaborate to develop personalized care plans. Rarus Health facilitates efficient sharing of medical history and test results among caregivers and specialists, ensuring coordinated and informed decision-making. The platform also offers guidance in navigating social benefits and clinical trial options, as well as access to online consultations.
Target Audience
The primary target audience includes families of children and adults with rare genetic diseases, developmental challenges, or uncertain diagnoses, who are seeking comprehensive support, coordinated care, and expert guidance.
Features
- Electronic Personal Medical History: Securely store and share medical information with healthcare providers.
- Personalized Care Plans: Customized treatment strategies developed by a multidisciplinary team.
- Dedicated Care Advisor: A single point of contact for guidance and support.
- Interdisciplinary Team Access: Consultations with specialists in relevant fields such as psychology, speech therapy, and occupational therapy.
- Social Benefit Assistance: Support in identifying and obtaining eligible social benefits.
- Clinical Trial Information: Access to information about relevant clinical trials.
- Online Consultations: Convenient virtual appointments with healthcare professionals.