PatientsLikeMe is an online platform where individuals with chronic or rare conditions record symptoms, medications, side effects, and functional status in a structured health journal and view personalized trend dashboards. The aggregated, anonymized patient‑reported data generate treatment effectiveness scores and can be securely exported via CSV or HL7 FHIR API for clinicians and researchers, while condition‑specific communities facilitate peer support and information exchange.
Funding
$26M raised to dateRaised to date based on public sources. This may differ from the amount the company actually raised and is based only on what is publicly available on the internet.
Founders
Product
Problem
Patients with chronic or rare health conditions often lack a centralized place to share real‑world experiences, compare treatment outcomes, and track personal health metrics, leading to fragmented information and suboptimal care decisions. Traditional clinical data sources do not capture day‑to‑day symptom fluctuations or patient‑reported outcomes at scale.
Solution
PatientsLikeMe offers an online platform that aggregates patient‑reported health data and connects individuals through condition‑specific communities. Users can log symptoms, treatments, and outcomes in a structured health journal, which is visualized in personalized dashboards. The platform curates treatment reviews and real‑world effectiveness scores, enabling members to compare options based on peer experiences. Data can be securely shared with clinicians, caregivers, or researchers via export tools and API endpoints, facilitating more informed clinical conversations and research studies. Community moderation and privacy controls ensure that shared information remains safe and compliant with health data regulations.
Target Audience
The primary users are individuals living with chronic, rare, or complex health conditions seeking peer support and data‑driven insights; secondary users include clinicians and medical researchers who leverage aggregated patient‑reported outcomes for care planning and study design.
Features
- Structured health journal for logging symptoms, medication dosages, side effects, and functional status, with trend visualizations
- Condition‑specific discussion boards covering over 2,800 diseases, supporting peer‑to‑peer support and Q&A
- Aggregated treatment effectiveness ratings derived from anonymized patient outcomes, searchable by condition and therapy type
- Secure data export options (CSV, HL7 FHIR API) allowing users to share their health records with providers or research partners
- Role‑based privacy settings and SOC 2 Type II compliance to protect personally identifiable health information
- Mobile‑optimized web app with push notifications for medication reminders, survey prompts, and community activity alerts